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 A letter to children with rheumatoid arthritis 

Hey you. I see you, with your cheeky smile and wise eyes. First things first I want you know that everything is going to be ok. You will need to be brave a lot and learn to be strong, but you will be ok. I expect lots of things are changing right now, you are… Continue reading  A letter to children with rheumatoid arthritis 

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Invisible illness, Mama mifsud blog

When ‘fatigue’ isn’t enough to explain how you feel

Aside from the constant pain and guilt, living with chronic illness is mostly like swimming through treacle. Or walking with lead boots constantly welded to your feet. It's near on impossible to describe what this kind of fatigue feels like. In fact fatigue is almost too mellow a word, it in no way describes the… Continue reading When ‘fatigue’ isn’t enough to explain how you feel

Disability, Invisible illness, Mama mifsud blog, Me, mental health, parenting, Perception

Inside the mind of someone chronically ill at night

I'm lonely. I'm going to die too soon. I must write a will. I hope I don't give my children my illness. I'm a terrible mother and a failure. How am I going to get everyone to school tomorrow? I hurt. I wish I didn't hurt. Damn it I forgot to put the washing on.… Continue reading Inside the mind of someone chronically ill at night

children, Disability, Invisible illness, Mama mifsud blog, parenting

Surviving the summer

I want to start with a string of expletives, but I won't. Summer. That precious time with our children stretching out before us. Sunshine. Slow motion running along the shoreline. Blissful laughter on the breeze..... You would think after seventeen years I would have learnt to be slightly more realistic, but no, I instead found… Continue reading Surviving the summer

children, Disability, Divorce, Invisible illness, Mama mifsud blog, Me, mental health, parenting, Perception, Relationships, Seperation

Hitting the wall

    I've just pulled a double all nighter. Unlike in the late nineties this wasn't all sex, drugs, rock and roll; more snot, baby crack and screaming. You I'm exhausted. In all honesty, exhausted doesn't even begin to cover it. Before my toddler became ill with a run of the mill viral infection, I… Continue reading Hitting the wall

apocolypse, children, Disability, Health and politics, left, Mama mifsud blog, Media, Politics

Taking the power back

I cried for most of Friday. I awoke to a Great Britain I didn't recognise, one that I never saw coming and that scared me. We voted to leave the EU and redefine our position in the world. My timeline went mad. I am mostly surrounded by other 'bleeding heart liberals' so mainly saw shock… Continue reading Taking the power back

Blue badge, Disability, hope, Invisible illness, Mama mifsud blog, Me, mental health, Perception

Love beats hate

I have always been someone who feels empathy; I struggle to hide or control my emotions, and don't generally see this as a negative thing. I wear my heart proudly on my sleeve- if I'm sad you will see it in my eyes, and I've been told my joy is infectious. It baffles me when… Continue reading Love beats hate