It's a tricky thing to embrace being off work long-term. I'm sure people think, that would be amazing, but the reality is quite different: it’s lonely and tedious, obsessing over every nuance of your health. Every. Single. Day. Life was previously so full of things that gave me meaning, my job, my role as a… Continue reading Redemptive stories
One foot in front of the other
I have been quiet for a while. As most of you know this tends to be because i am out living life as much as i can, going on adventures and challenging myself. Whilst this is true, on this occasion its also because i have been exhausted. Too exhausted to sit in front of my… Continue reading One foot in front of the other
Love beats hate
I have always been someone who feels empathy; I struggle to hide or control my emotions, and don't generally see this as a negative thing. I wear my heart proudly on my sleeve- if I'm sad you will see it in my eyes, and I've been told my joy is infectious. It baffles me when… Continue reading Love beats hate
There’s f**k all wrong with her
I'm sat here broken and sobbing. I just had one of the most humiliating experiences a person can have, and the worst part? It won't be the last time. It's a sunny Tuesday afternoon. I've just had my hair done for the first time in a year; my boyfriend arrives tomorrow and we are off… Continue reading There’s f**k all wrong with her
Housing, homelessness and the crisis on our hands.
Currently you are not eligible for any properties. That's the message I have seen every Saturday, for the last 208 weeks. We ended up in our housing predicament, four years ago, having moved five times in four years. Three of those houses became student lets for a significantly higher profit, and two were sold on,… Continue reading Housing, homelessness and the crisis on our hands.
A system worth saving
So I am one of the lucky ones. I see where tax payers money goes, and how well it can be used when put into the right hands. I'm currently sat waiting for my second brain scan in 8 months. This year so far I've seen neurology, rheumatology, cardiology, urology, dermatology, stroke and clinical immunology… Continue reading A system worth saving
Finding my fierce
It's been a while. There are many reasons for that, but the most important one is this. Living. I have been living. Life with chronic illness is a curious creature, that shifts like the tides throughout the year, only less predictable. When I'm gifted a good day, I have to grab onto it tightly with… Continue reading Finding my fierce
Flying on the wings of change
I think I'm finally finding my place in the world. I had no idea where this journey would take me when I embarked upon it, but I find myself with a new unwalked path ahead of me. I set out with no agenda other than to clear my head of the conflicting thoughts swirling around,… Continue reading Flying on the wings of change
Please, see ME….
I'm coming off the back of a bad one. It's always strange when I have been stuck in the house so much. I almost get scared of the outside world, that something terrible is going to happen to me if I venture out into it. How will I speak to people? Will anyone even see… Continue reading Please, see ME….
Walk on by…..
I am one of the 19% of the UK population who lives with disability. Yes, that's one in every five people live with a disability of some kind. To put it another way 11.9 million British people. Even I had no idea that the figures were so high. The word 'disabled' covers a broad spectrum of… Continue reading Walk on by…..